j's story

J's mum first got in touch with us back in 2018, requesting some support for her truly inspiring little girl. Like with Joshua's story, the family wish for J to remain 'nameless' but would like to share just a part of her story so other families know they are not alone, and our team of supporters to know the impact their work is having.

My little girl's life (and  family's life ) was turned upside down a few years ago when  she  was diagnosed with a cancerous brain tumour. After spending many weeks back and forward to the doctors, and being made to feel like a paranoid mum, it was an optician who finally helped.  We were sent straight to the children's hospital where she was booked in for an operation to remove it ASAP. 

We were told at the time how bad the outcome could be but we had no option if she didn't have the op. She would have about 4 months to live... 

After an agonising 16 hour operation she was in intensive care.  She couldn't talk swallow, or open or close her eyes, she couldn't sit unaided or really do any thing.  But after many months of harsh treatment of both chemo and radiotherapy, and lots of physio, OT and speech & language, she is now thriving.  She still relies on her wheelchair, but can now talk, eat and do most things herself. 

J always smiled throughout her treatment and never complained.  She is a true little wee warrior...

However, along with all that harsh treatment came the side effects; her radiotherapy has killed her hair follicles which means most of her hair will never grow back (she used to have the most beautiful, long, thick blonde hair) and she also stopped growing for a long time. Luckily she is now receiving hormone treatment, and for the first time in a few years she's grown out of her clothes. 

We recently found out that her ovaries don't work also due to radiotherapy, meaning she may not ever have children - she is also on medication to hopefully get her ovaries working again.

For all the families just starting this horrible journey and joining this group that nobody wants or asked to be part of: fight hard, stay strong and take everyday as it comes. 

Let others help when they offer - this is something I never did and some days I was just so exhausted, but seeing my little girl fighting strong every day made me fight too xxx

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